
I am grateful that I work and learn on the ancestral and unceded lands of the hən̓q̓əmin̓əm̓ and Sḵwx̱wú7mesh Nations in Burnaby and on the ancestral and unceded lands of the xʷməθkwəy̓əm (Musqueam), Skwxwú7mesh (Squamish), Stó:lō and Səl̓ílwətaʔ/Selilwitulh (Tsleil-Waututh) Nations in Port Moody

THE CHILD WHO NEVER GROWS UP
Original (Published in "Lun's World"): 2004-04-04
Rewritten: 2025-05-06
A newborn baby needs to be fed, has his diaper changed, played with and put to sleep every two or three hours. In fact, the situation of taking care of Lun is similar.
It was a feeling of being unable to move and being tied up.
It was almost midnight, and I thought I could calm down and complete the work on my desk. I just went into Lun's room and asked him to get up and take a milkshake so that he wouldn't get hungry in the middle of the night and has to get up to find something to eat. He protested by lying in bed. I asked him if he wanted to take a nap, but he didn't say anything. After I repeated it, I put the milkshake back in the refrigerator for tomorrow morning.
I was sitting at the table, pondering how to make my first move... I heard his footsteps, looked up and saw him opening the refrigerator, finding the remaining half plate of stir-fried beef noodles, and preparing to put it into the microwave along with the metal plate.
My thoughts were disrupted, but fortunately my wife poured the beef noodles into a plastic bowl in time and put it into the stove. Then my wife asked me if I made a milkshake, so I took it out of the refrigerator and heated it in the microwave.
At this time, Lun took out the remaining half plate of fried rice from the refrigerator and expressed his desire to eat. He had a bad habit of preparing things he might eat and placing them in front of him before choosing to eat them. Sometimes he can be indecisive and can't make a decision.
Lun thinks that simply heating it in the microwave does not give it enough "wok flavor", so it is customary to stir-fry it in a wok. He prefers food with strong flavors, so when I cook, he supervises me adding the seasonings.
When I finished all the procedures, it was already after midnight. My thoughts and inspiration had disappeared, and I was feeling depressed and couldn't write.
He picked a dish at random, sat on the sofa, and ate it leisurely, bit by bit. To prevent the leftovers from drying out and becoming hard, I put it back in the fridge.
I felt a strong sense of oppression in my heart. Within the limited time, my body was exhausted and I could neither rest nor concentrate on completing a task. If he doesn't cooperate, I'm not sure how long I'll have to wait before I can sit down, calm down and cultivate my thoughts. Watching time pass by, I feel anxious and helpless.
Lunlun lives in his own world, following his needs and schedule. We have been arranging and training his daily routine for him, but at most we can only regulate 70 to 80 percent of his life. The rest depends on his condition, mood and luck.
A child with special needs is like a baby who never grows up. Normal children will grow up and eventually become independent. Children with special needs grow up very slowly mentally and have to rely on their parents for support, while parents need to prepare themselves to seek and accept help from the outside world before they become old and weak.